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Back to the grind: navigating your routine with Parkinson’s

Returning to your routine after a break can be particularly challenging for those living with Parkinson’s, especially considering how quality of life (QoL) may fluctuate with the seasons. A recent study suggests that QoL tends to worsen in spring and improve in autumn. This implies that the return from autumn holidays can be a crucial time to monitor and adjust symptom management, particularly in relation to depression, which emerges as a key factor for QoL during this time of year.

Gradually transitioning back to your routine

Resuming daily activities takes time and care, especially for those living with Parkinson’s. It’s important not to rush and to give yourself the necessary time to readjust. Starting with simpler tasks and gradually increasing the level of engagement can help reduce stress and fatigue, making the transition more manageable.

A recent study emphasizes the importance of a personalized approach to physical rehabilitation for Parkinson’s patients, highlighting how gradual programs, tailored to individual capacities, can improve adherence and long-term outcomes. Organizing the day with periods of activity and rest is essential to maintaining energy balance. Taking regular breaks prevents physical and mental overload, ensuring a more sustainable management of energy levels.

In addition, considering the use of support tools or techniques, such as ergonomic devices or relaxation exercises, can make returning to daily activities easier and safer.

Facing challenges during stressful periods

During stressful times, such as returning from vacation or other changes, it’s helpful to remember simple strategies to maintain calm. Planning ahead, setting realistic expectations, and relying on a support network can help mitigate stress.

These techniques are especially relevant during times of interrupted routine, like holidays, when maintaining a certain level of structure is important for better managing Parkinson’s symptoms.

Moreover, reducing stress is crucial, as increased stress is associated with worsening symptoms, particularly tremors, fatigue, and sleep disturbances.

Managing anxiety about change

Facing a new routine can generate anxiety, a common feeling for those living with Parkinson’s. Techniques such as mindfulness, breathing exercises, and other relaxing activities can be effective tools for managing stress and promoting a calmer approach.

One study highlighted how anxiety and depression can negatively impact the quality of life for Parkinson’s patients, worsening symptoms and making disease management more difficult. Therefore, integrating relaxation techniques into daily life can not only help manage stress but also mitigate the negative impact of these conditions on disease progression. Psychological support can also offer valuable help in managing these emotions.

Reviewing medications and medical support

The return to a more structured routine can be an ideal time to review medication therapy with your neurologist or trusted doctor. Needs may change over time, and adjustments to therapy might be necessary to better manage daily life.

A recent study recommends continuous monitoring and adjustment of therapy to ensure it remains effective during changes in daily routine.

Scheduling regular check-ups and maintaining open communication with healthcare professionals is crucial for optimal disease management.

Incorporating physical exercise into daily life

Physical activity is essential for those living with Parkinson’s. Maintaining a regular exercise routine, even light activities, helps improve mobility, strength, and balance. Activities like yoga, swimming, walking, and gentle exercises are particularly beneficial.

Recent studies have shown that physical exercise not only improves physical health but can also slow the progression of motor symptoms of the disease, while improving mood and reducing muscle stiffness.

Cultivating social relationships and managing work

Returning to daily activities doesn’t mean isolating yourself. Social relationships are essential for emotional and psychological well-being. Joining support groups, engaging in recreational activities, or simply staying connected with friends and family can positively impact your quality of life.

Additionally, it’s important to be aware of your rights in the workplace. People with Parkinson’s have the right to request reasonable accommodations, such as modifying work schedules or reassigning specific tasks, to better manage symptoms. Keeping an open dialogue with employers and colleagues can help create a work environment that supports productivity and well-being.

Re-entering a daily routine may seem daunting for those living with Parkinson’s, but with careful planning and the right support, it’s possible to approach this time with confidence and peace of mind. By staying active and nurturing meaningful relationships, this transition can become an opportunity to renew your energy and face daily life with greater awareness and determination.

Sources:

  • Wu L, Li S, Tang Y, et al. Quality of life: Seasonal fluctuation in Parkinson’s disease. Front Neurol. 2023;13:1035721. Published 2023 Jan 4. Janssen Daalen JM, Hubbers J, Sharifi Bonab M, et al. How Vacations Affect Parkinson’s Disease. Mov Disord Clin Pract. 2022;10(1):151-153. Published 2022 Nov 2.
  • Fox, S. H., et al. “Management of Parkinson’s disease: practical guidelines.” The Lancet Neurology, vol. 17, no. 5, 2018, pp. 386-396.
  • Park A, Stacy M. Non-motor symptoms in Parkinson’s disease. J Neurol. 2009;256 Suppl 3:293-298.
  • Olanow CW, Stern MB, Sethi K. The scientific and clinical basis for the treatment of Parkinson disease (2009). Neurology. 2009;72(21 Suppl 4):S1-S136.
  • Chaudhuri KR, Healy DG, Schapira AH; National Institute for Clinical Excellence. Non-motor symptoms of Parkinson’s disease: diagnosis and management. Lancet Neurol. 2006;5(3):235-245.
  • National Collaborating Centre for Chronic Conditions (UK). Parkinson’s Disease: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care. London: Royal College of Physicians (UK); 2006.

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